PNH is an ultra-rare blood disorder. 
We're here to support those affected by it. 

The PNH Support Association of New Zealand was established to support New Zealanders living with Paroxysmal Nocturnal Haemoglobinuria (PNH).

We provide a network for patients to share experiences and knowledge. While we can't promise to make the disease burden any lighter, we hope to empower patients and families to manage the PNH condition as effectively and positively as is possible. 

Please have a look around and don't hesitate to get in touch if you want to know more, or would like to connect with the PNH community in New Zealand.