Symptoms

Patients may experience some or many of the below symptoms, as well as other less common symptoms;

• Anaemia
  
• Chronic severe fatigue
  
• Jaundice
  
• Nausea
  
• Abdominal pain
  
• Muscular pain
  
• Joint pain
  
• Dark/unusually coloured urine
  
• Lack of mental clarity – forgetfulness, difficulty concentrating
  
• Insomnia
  
• Tingling or numbness, particularly in the extremities
  
• Shortness of breath
  
• Headaches
  
• Dizziness
  
• Loss of appetite
  
• Oesophageal (gullet) pain
  
• Erectile dysfunction
  
• Arrhythmia (irregular heartbeat)
  
• Difficulty dealing with daily tasks and situations
  
• Digestive problems
  
• Lack of motivation
  
  

The progress of PNH is very difficult to predict so it is important to ensure your doctor is well informed of your medical history, lifestyle and any changes to symptoms experienced or the severity of those symptoms. 

Many of these symptoms are related to haemolysis. Please click here for further information about haemolysis and common triggers.


PLEASE NOTE: This information is intended for general knowledge only and is not to be substituted for medical advice and its accuracy is not guaranteed. Please consult with your medical practitioner for further information regarding your personal circumstances.

This information has been prepared by PNHSAA Inc., is copyright protected and is used with their permission.

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