Online resources
Please speak to a medical specialist to clarify any health-related information available on this website.
Introductory Understanding Paroxysmal Nocturnal Haemoglobinuria (PNH), Alexion Pharmaceuticals Australasia (2011) Paroxysmal Nocturnal Haemoglobinuria Treatment & Management, Medscape (2011) Specialist research The Role of Complement Inhibition in PNH, Peter Tillman, (2008) How I treat Paroxysmal Nocturnal Haemoglobinuria, Robert Brodsky (2009) Long-term treatment with eculizumab in paroxysmal nocturnal haemoglobinuria: sustained efficacy and improved survival, Leeds University clinic (2011) Case report - Successful application of nonmyeloablative stem cell transplantation for paroxysmal nocturnal haemoglobinuria, (2007) |
Useful LinksBelow are some of our closest supporters and international partner associations.
http://www.nzord.org.nz New Zealand Organisation for Rare Disorders Advocacy and support services for those affected by rare disorders http://www.leukaemia.org.nz Leukaemia and Blood Cancer New Zealand Advocacy and support services for those affected by leukaemia and blood disorders http://www.pnhsaa.org.au PNH Support Association of Australia Advocacy and support services for those affected by PNH in Australia http://www.pnhdisease.org PNH Support Group An international online support community for those affected by PNH http://www.pnhca.org/ Canadian Association of PNH Patients Advocacy and support services for those affected by PNH in Canada |
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