PNH Support Association of NZ
  • Home
    • About PNHSANZ
  • What is PNH?
    • What is PNH?
    • Diagnosis
    • Symptoms
    • Treatment >
      • Curative
      • Supportive
      • Complement Inhibition (Soliris)
    • Haemolysis
  • Patient Resources
  • Contact Us

Online resources

Picture
Please speak to a medical specialist to clarify any health-related information available on this website. 

Introductory

Understanding Paroxysmal Nocturnal Haemoglobinuria (PNH), Alexion Pharmaceuticals Australasia (2011)  

Paroxysmal Nocturnal Haemoglobinuria Treatment & Management, Medscape (2011) 

Specialist research

The Role of Complement Inhibition in PNH, Peter Tillman, (2008)

How I treat Paroxysmal Nocturnal Haemoglobinuria, Robert Brodsky (2009)

Long-term treatment with eculizumab in paroxysmal nocturnal haemoglobinuria: sustained efficacy and improved survival, Leeds University clinic (2011)

Case report - Successful application of nonmyeloablative stem cell transplantation for paroxysmal nocturnal haemoglobinuria, (2007)


Useful Links

Below are some of our closest supporters and international partner associations. 

http://www.nzord.org.nz
New Zealand Organisation for Rare Disorders
Advocacy and support services for those affected by rare disorders

http://www.leukaemia.org.nz
Leukaemia and Blood Cancer New Zealand
Advocacy and support services for those affected by leukaemia and blood disorders

http://www.pnhsaa.org.au
PNH Support Association of Australia
Advocacy and support services for those affected by PNH in Australia

http://www.pnhdisease.org
PNH Support Group
An international online support community for those affected by PNH

http://www.pnhca.org/
Canadian Association of PNH Patients
Advocacy and support services for those affected by PNH in Canada
Powered by Create your own unique website with customizable templates.