Supportive Treatment
Most PNH patients will receive one or several forms of the following supportive treatment options.
Blood Transfusions
A patient may require a blood transfusion to replace blood cells lost through haemolysis. Usually only red blood cells are transfused, as the plasma and leukocytes (white blood cells) have been removed from whole blood. Some patients need occasional transfusions after an illness, injury or surgery and other patients may be transfusion-dependent, requiring regular transfusions every few months or weeks.
Prescription medication and supplements
Some patients are prescribed corticosteroids (such as prednisolone) to reduce the rate of haemolysis by suppressing the body’s immune response, which in turn suppresses complement activation.
Anticoagulants (for example, warfarin) may be prescribed to reduce the risk of a blood clot, particularly if a patient has already had a thrombotic event.
Folic acid and iron supplements may be prescribed to assist the body’s production of blood cells to counteract the effects of haemolysis.
Anticoagulants (for example, warfarin) may be prescribed to reduce the risk of a blood clot, particularly if a patient has already had a thrombotic event.
Folic acid and iron supplements may be prescribed to assist the body’s production of blood cells to counteract the effects of haemolysis.
Natural therapies
Many patients turn to complementary and natural therapies such as acupuncture, massage, meditation and drug-free pain management techniques to help ease the symptoms of PNH.
Natural therapies may help to reduce pain and stress. However, certain herbal medications can interact with prescription drugs, particularly anticoagulants such as warfarin, and others can exacerbate PNH symptoms resulting in complications. As PNH is unpredicatable and differs between individuals, it is important to discuss your condition in detail with your medical practitioner prior to taking any non-prescribed supplements.
PLEASE NOTE: This information has been prepared as a guide for patients. It is not to be substituted for medical advice and accuracy is not guaranteed. Please consult with your medical practitioner for further information regarding your personal circumstances.
This information has been prepared by PNHSAA Inc., is copyright protected and is used with their permission.
Natural therapies may help to reduce pain and stress. However, certain herbal medications can interact with prescription drugs, particularly anticoagulants such as warfarin, and others can exacerbate PNH symptoms resulting in complications. As PNH is unpredicatable and differs between individuals, it is important to discuss your condition in detail with your medical practitioner prior to taking any non-prescribed supplements.
PLEASE NOTE: This information has been prepared as a guide for patients. It is not to be substituted for medical advice and accuracy is not guaranteed. Please consult with your medical practitioner for further information regarding your personal circumstances.
This information has been prepared by PNHSAA Inc., is copyright protected and is used with their permission.
